Saturday, August 29, 2020

Aaron

It's hard to explain an entire person in words. In fact, I'm sure it's impossible. My brother Aaron was a complex person...but I want to do my best to memorialize who he was to ME, because he was such an integral part of my life and my being. Despite our age difference of nine years, we were very close. I now look back at my falling ill at twenty-two as a blessing and nothing else, because it was what allowed us to grow close as a teenager and young adult and stay close into adulthood. And now that the unthinkable has passed and he's gone, I am so happy that I fell ill and it was serious, because without that, we may not have ever gotten to really know each other, and we would never have been as close as we were. Everything I suffered in illness and with my surgeries is worth it to me now, for what I gained in familial bonding. I am so grateful for it.

From the time Aaron was a baby, I took care of him quite a bit. The age difference between us allowed me to really feel like a helpful "big kid"; I got up and helped him go back to sleep when he woke up at night. I loved carrying him around on my hip and playing made up games with him. He was whip-smart, had these giant blue/green eyes and this kind of stern little voice that was seriously adorable. He was kind of a little ray of sunshine for my family during a difficult time with Bekah's diagnosis with autism. I remember trying to teach him to read when he was three years old and being amazed at how quickly he learned. Me and Jenn loved putting him in our little home movies because he'd say his lines with such attitude. I was his "second mama".

I remember Aaron learning to play the piano while still a kid, and the instructor at a music school told my mom that Aaron was the kind of talent you see maybe once or twice in a lifetime. He played piano with a natural, graceful ease and never really understood how cool it was. 

Fast-forward a bit to when I fell ill with Ulcerative Colitis, got divorced, and had to move back home with my parents. Their house was pretty full, my old room no longer mine. The only room they had for me that made sense was the double room above the garage...which was currently Aaron's room. I remember thinking, "Uh oh...I don't think any thirteen year old, even Aaron, wants to be stuck sharing space with his older sister."  Especially given the nature of my illness. It was the kind of thing that made most people feel awkward and uncomfortable to talk about.

Despite our age difference, we learned as we shared space that we ended up being kindred spirits. We had so many similarities: our sense of humor, sarcasm. We both had tough shells that hid sensitive hearts. We both chose anger as a go-to reaction over sadness or fear, because it made us feel less helpless. We loved animals, and animals loved us. Especially him.

The differences we did have were funny to us and we joked about them often. He is one of neatest people I've ever known, his part of the room was always meticulously organized, whereas I was (at the time) kind of a slob. Being sick really compounded that. Also, I wore shoes until they were literally falling apart on my feet. I'd wear the same few shirts all the time for years on end with no heed to if they were trendy or not, it only mattered to me that I liked them. Aaron had way more of a sense of style than I ever had, and he took perfect care of his shoes and clothes, I wore mine until they were in tatters.

We used to quote lines from movies and songs back and forth, could do a whole scene without breaking character. We were both introverts, and when one of us came into our room angry, we didn't say anything to each other for sometimes an hour, because we knew that the other needed space. Then, a certain amount of time would go by, and one of us would quote some Joker line from The Dark Knight, and we'd laugh and everything was good.

Another of the movies we loved quoting was The Social Network. The line, "And you're not a hugger" while hugging each other. Neither of us were really "huggers", and maybe that's why I remember so well the hug Aaron gave me when I got home from having my first surgery to have my large intestine removed. I was trying to be brave before I went to the hospital. He was trying to be, too. But he hugged me so fiercely, and we both cried. I still remember how that hug felt, and I think I always will.

At some point in his teen years, Aaron started using drugs. Heroin became his drug of choice, and I watched my brother slip away from me. I used to dream about him using, while I stood there screaming at him and he couldn't hear me. I told him he was playing russian roulette, you couldn't safely use heroin. He went to a rehab program in Salt Lake for a few months, but he relapsed eventually. I began dreading getting a call that he had OD'd and died daily.

And then my parents found out about John Volken Academy; but it was Aaron who decided he wanted to go there. It would be out of state, with a minimum of two years. It would be hard, hard work. But he was sick of the russian roulette, and he went. And it was miraculous what happened there. It wasn't right away, and it took hard work for him, but...I got my brother back.

The first couple of months, we didn't have any communication except hand-written letters. You could tell he wrote letters with the same care that he had with anything that was his, his handwriting precise and perfectly-sized. That handwriting was like a smile, when I hadn't seen his face for months. Then, he was able to make calls and finally Skype almost weekly as he progressed through the program. 

I remember the first time we Skyped and I finally did see his face, I recognized him again. The REAL him, the one I knew so well. He was back. And we had that real him for two years at the JVA. My parents were able to go visit him for weekends every few months, and they were there right after I had my daughter and he got to facetime with me from my hospital bed. He was so happy he was sober for those moments, he said it again and again. We talked like we used to when I'd been afraid I was going to die, and he was just a teenager. I watched my brother grow into a man I was proud of, and he was proud to be.

Several months later, he came home after two years sober and within a few weeks, he relapsed and OD'd. We were supposed to hang out a couple of times, but with the coronavirus keeping me isolated and some unseasonable weather, we had had to reschedule twice. The day he was supposed to come over was sunny. I noticed he hadn't answered my text from the night before. I called him. I kept calling him. He didn't answer, and a pit opened in my stomach that hasn't since gone away. I just had this feeling, like he was unreachable. And he was.

John and I went to his apartment and John went inside. I stayed in the car with our baby, but I just knew. I told myself, no. But I was overcome with this feeling that he wasn't here anymore. A bone-deep feeling that I couldn't shake. I'll never forget the look on John's face when he came out of the building. He knew the news would devastate me. He'd told Aaron not long before he went into the JVA, "If your sister lost you to that stuff, if she had to find you...she'd be devastated. You know that, right?" And honestly, if it weren't for me being in isolation due to being high-risk, I WOULD have been the one who went in there and broke into his room and found him. And I don't think I could have ever gotten that moment out of my head.

John took our daughter as I collapsed. I had one of those moments where you see yourself from outside your body, and I watched myself slam my hands into the sidewalk outside his apartment, howling like a wild animal. I never knew devastation and horror like I knew in that moment. He was in that building, but I couldn't go in. He was right there, but not really. All I could hear myself saying was, "I didn't even get to see him! I didn't get to see him in person!" I actually thought I might be sick from the knowledge that I hadn't seen my beloved little brother, hugged him, one last time. I hadn't hugged him or seen him in person for two years. And now I never would.

I don't want Aaron's death to overshadow his life. He was and IS so important to me. He worked so hard to be sober, and in a way I'm grateful that he didn't suffer a slow slide back into addiction, because the Jeckyll and Hyde part of addiction is devastating to people who love the addict. My brother had a moment of relapse and that was it. It doesn't erase all the hard work he put in, and the strides he made as a person. If there is anything after this, which I have told myself in the midst of this loss there HAS to be, I want to believe that he is free from his addiction there and that his soul is able to continue to grow without that shackle. Aaron and I were so similar in the things we suffered. My body reacts to the emotional and mental duress with autoimmune flare ups, and his fell back into addiction.

Aaron loved Harry Potter. We both read it every year in the Fall and Winter. We loved The Hunger Games, which we would read AFTER Harry Potter. We read a lot in the Winter because we both didn't like Winter, it helped pass the dreary, short days and long nights when we both suffered from insomnia.

I plan to read both series with my daughter and tell her all about how much her Uncle Aaron loved them. How we laughed at things in the movies that were lame compared to the books, like everybody's hair in Goblet of Fire, or the annoying metal "modern art" Cornucopia in the first Hunger Games that was nothing like the golden one in the book. I want to raise Avery listening to the Scott Joplin piano rags he played tirelessly until he could ask to play at Disneyland just for fun and because he loved it there, and the pianist would watch him, impressed, worrying for his job a little. I want her to listen to The Doors with me, and I'll sing the crazy parts of songs in my best Jim Morrison voice like Aaron and I always did. I want to keep my brother alive in every way I can, because he will always be alive to me.

Right now, I'm in some kind of denial where my brain keeps trying to think that he's still at the JVA in Washington, and if I just write him enough, he'll eventually answer back. I wear his shirts almost every day and every night. I kept a box he'd written his name on, that he had his toothbrush and razor and hairbrush in. I just want to see his name, see that he wrote it. He was here.

And maybe, eventually, I'll get one of those signs people talk about. Those signs that our loved ones are still alive, just somewhere else. I lay in bed at night, and I picture what that sunny day would have been if he'd come over and we'd sat in lawn chairs in my front yard and talked, and he'd met Avery. I think about it over and over so maybe I'll have a dream that seems so real, I'll have to wonder if somehow, it is. 

And if I don't, I'll think about that sunny day so often it will almost seem like a memory. The memory of my healthy, happy brother coming home to me.




Wednesday, May 20, 2020

true loss

i haven't written on this blog in SO. LONG.

in fact, i had started to truly wonder if writing was lost to me. for most of my life, i've been a writer. then things occur that smother your voice somehow, or take it away temporarily. life changes and shifts and gets the kind of busy that doesn't allow for quiet moments of reflection or creativity to be written down.

and then something massive happens. something that affects you at a core level. looking at my last written blogs was bittersweet because i'm reminded everytime i look at something i haven't seen for awhile, that i'm not the same person i was when i saw it last. these blogs were written by a different me. a me that had all kinds of problems, it's true; but that me wasn't missing an integral piece of my being. i thought i knew pain, and i thought i understood loss. after all, i've lost so many things that regular people take for granted because of my health. that kind of loss affected me...but it didn't leave a chasm behind.

losing my brother did. losing my brother has left a chasm so deep, i get lost trying to find the bottom of it. the magnitude of his loss and what it's taken from my core being, is something too immense for me to measure or even understand. i have questioned absolutely everything about existence - mine and everybody else's. i have looked at each person i love and imagined the horror of losing them. i have cried so constantly that i have a permanent, dull headache behind my left eye and the only makeup i trust myself to bother with is waterproof mascara.

most of all, though, his name floats around in my head 24/7. sometimes i find myself whispering it. sometimes i start saying "why" out loud, over and over. i have a hard time getting out of bed, even with taking care of an eight month old. i wear his shirts every day and every night, and i have a bracelet he made me in high school that i'm scared to wear because it's made of yarn, and what if it wears down and breaks and i lose it somehow? things that were his or things he gave me are more precious to me than i can put into words at this point. they're my tangible reminders, my comforters.

i don't quite know who this new me is. i am raw, like i was just burned severely and am standing in sunlight. i am so overtaken by grief, and i'm not the same mama to my eight month old baby that i was 21 days ago. i see who i was, and how i'll never be that person again. and it's not just hard.

it's unbearable.

but we bear the unbearable in life, don't we? growing up seems to me learning hard lessons like that one. you think it's unbearable, but you are still here.


every morning i wake up in a world where my brother isn't, anymore. i don't know how, but i do.
i don't think that our souls die with our bodies. i believe he's still somewhere else. that we'll see each other one day again. until then, i'll use an analogy from a series both me and Aaron loved: it's said that after fred's death, george could never cast a patronus again.

that sums up the bottomless emptiness losing my brother has left behind.



Thursday, May 14, 2020

all my tears

When I go don't cry for me
In my father's arms I'll be
The wounds this world left on my soul
Will all be healed and I'll be whole
Sun and moon will be replaced
With the light of Jesus face
And I will not be ashamed
For my savior knows my name
It don't matter where you bury me
I'll be home and I'll be free
It don't matter where I lay
All my tears be washed away
Gold and silver blind the eye
Temporary riches lie
Come and eat from heaven's store
Come and drink and thirst no more
So weep not for me my friend
When my time below does end
For my life belongs to him
Who will raise the dead again
It don't matter where you bury me
I'll be home and I'll be free
It don't matter where I lay
All my tears be washed away
All my tears be washed away

Tuesday, January 24, 2017

A tale of Opression (that dastardly fellow! )


Opression had a big comeback in 2016, proving how it hangs back, but never really goes away. Opression is a master at hanging back and waiting for its chance, and its chance came in the form of a loudmouthed orange lummox with the mentality of a thirteen year old in the insecure and uncomfortable beginnings of puberty.

This ''man" gave Opression a megaphone, and hey- Oppression isn't picky. The orange lummox was simply a mouthpiece, loud and uncouth but very effective. All of Opression's favorite pupils and old friends and budding protégés heard the call and eagerly began crawling out of their holes to heed it.

Nevermind that Opression's latest poster boy was a figure of much derision and little respect. Beggars can't be choosers, and his pupils and old buddies are restless. They want to go mainstream, feel safe coming out of the woodwork and taking off their white hoods- (okay, let's not get carried away...Opression encourages cowardice, the white hoods are staying on).

Oppression's new mouthpiece promises many new victims in his speeches. He is willing to throw around money and power with his itty bitty hands, to support the Followers he amasses to his cause. And he knows all about Following-he spends more time on Twitter than your average high school student.

And so- Twitter is a hive-minded haven for youth no longer! All of the older people who denounced it a year ago find themselves Following now as well, to read their leader's latest invaluable spatters of word vomit, in 160 characters or less. After all, they have to keep up with their Overlord's Alternative Facts, and bombard their brains with the message he is constantly tweeting about, and Twitter is the best place to do so.

The message of course, is Opression, blanketed with clumsy phrasing or sometimes a dollar store mustache and glasses type of disguise. It need not be hidden too carefully or well, because those it's meant for will never lift the blanket or notice the mustache is crooked, and all the rest see it for exactly what it is no matter how it's disguised.

Opression is largely obvious. Subtlety has never really been its thing. This is why every now and then, Opression gets kicked in the shins and run offstage...but all it does is get very quiet and hide. It doesn't really go away, or stay gone. It hides its face and bides its time, waiting for its next megaphone or disguise. It waits and mutates like a virus, so that next time it won't be chased away so easily. Opression only has the means it's given, but there's always someone to invite it back in and give it a voice. After so long, Opression knows its game, and it especially knows human beings. It knows them well.

See, Opression understands something that mankind in general never really seems to grasp:
Those who cannot remember history are doomed to repeat it. And humanity has a very poor memory.

Thursday, February 12, 2015

not yours

mountains and valleys
gulches and rivers and plains

Friday, February 6, 2015

what the....

lately has been crazy.

and given the kind of life i've had the past few years (soon i'll be saying several. oy vey! i'm getting old...) i don't say that lightly.

here's the thing i've come to understand....even though i've made progress as a person, and my joys are sweeter and life is better over-all, i still experience what feel to be the lowest of lows. my challenges sometimes seem like a round of shots fired, paused for the reload and then fired again. i'm a better person now than i was a year ago. i'm happier and stabler and gentler and more free. but when challenges come i feel like they hurt exactly the same, maybe even more sometimes. and i'm still meaner than i want to be and still unforgiving of people and myself.

i'm just trying to get into a more sustainable rhythm in life. i don't expect anything to be easy. i know that i'm an intense person. it's what gives my creativity its life and its edge and so i'll embrace it. but i want to be able to ride the intensity like a wave, not get swallowed up in the undertow. does that make any sense?

do i ever?

hmm.

Thursday, January 29, 2015

raze&rebuild

razed
i break like the glass castle
i fight so hard not to be

broken
so many times by you
broken bones, broken spirit

breaking even
either way you go
what you do and wont

even when i think
i couldn't possibly
break any more.

Thursday, January 22, 2015

plaster love

a heart made of plaster
cheap, chipped
shiny
while i sang away for you, day & night
pretending it was sturdier ware

then, true to form,
it gave out

cracked, crumbled
dust
what i have now is nothing

and that fits too



Wednesday, December 31, 2014

new year, same me

everybody loves to throw around the "new year, new you!" phrase. i dislike it.

i understand the sentiment, i just don't agree with it. over the past couple of months, i've been working really hard on knowing exactly who i am, and exactly who i am not. i've considered the positive and the negative, but mostly the positive. truth be told, i have spent more than enough time on the negative in my life already.

so lately, i've come to know myself and all of the great things that that entails. i have considered my strengths, the things i am naturally adept with, my potential that is brimming just below the surface or is sitting on the surface, but unused. i am slowly but surely enriching my life by adding things to it that i know i will love or maybe, will simply challenge me. i want the challenge. but i'm not undertaking all of this hoping to arrive at "a new me". i want to arrive as the me i am now. i want to experience life as i want it, as i hope for it. my own standards and judgements are all that matter. and there's no way in hell i'm going to sell myself short, and there's no need for reinvention. if you don't like yourself, by all means, make some changes. but don't expect to be someone entirely different. that doesn't happen. the good in you and the strength are already there. you just need to bring them out. you need to not be afraid to try and fail and maybe suffer a little.

the thing i've learned is, things that are supposed to seem great are anything but, when you have no sense of yourself. who you actually are. enjoyment isn't possible when you have no sense of yourself. by the same measure, suffering is not really that bad, when you're not afraid of taking it on because you have a sense of yourself and what YOU can handle and who you are. the good is that much better, and the bad is survivable when you respect yourself and know yourself and LIKE yourself.  because no matter what, you can't lose that. no matter what happens to you. and i've learned that recently. i finally have. "man's search for meaning" has finally smacked me upside the head with understanding. and not a minute too soon.

this morning i'm sitting on a porch chair in sunny southern california. the weather is beautiful, i am watching the sea, breathing it in. i am exactly where i want to be. the second year in a row, i've made this happen because it matters to me. funny enough, i've had problems since arriving here. a medication issue, that's left me with some pain and unpleasant symptoms. however, i'm solving that problem and it's not at the forefront of my mind.

what's at the forefront of my mind? that it's sixty-something degrees outside, the sun is beating down on my body and the air is fresh and i can taste the ocean in it. that tomorrow i will party with some of the coolest family anyone could hope for, that i will see an old friend while here. that this week holds for me whatever i want it to. that when i go back home, i will be buoyed up to survive the rest of the winter.

what else could i need?

this new year is going to hold for me, whatever i want it to. my physical limitations are shrinking daily and i am taking care of myself mentally and physically, getting stronger. i will do whatever i want to. i will be me, the same me i've always been- but with the experience of illness, heartbreak, rock-bottom-and-up-again, a renewal and removal of disillusionment. i will write passionately, laugh freely, (at myself, most of the time i'm sure) and surround myself with whomever and whatever i choose to. and at the end of the day, when i go to bed and look at myself in the mirror, i'll be happy that i am living MY life in THIS body. as THIS person.

and that's enough.

Saturday, December 27, 2014

parasite

i knew that when the thought of you no longer made me sick,
i was done.

Thursday, December 4, 2014

finders keepers

writing is my way to speak. my way to dream, to escape. to be someone. when things are really bad in my life, i stop writing. i deprive myself of the particular joy and sense of purpose it gives me. there's a kind of famine inside. right now, is the first time i've been able to write anything for too long of a while.

i've been moved. there are lots of things that move me. music. books. movies. nature. photographs and paintings. when i am being self-destructive as i had been, i hide from the things that move me. i become immoveable and numb to everything except pain. and then pain takes over and rules my existence.

 not physical pain, not necessarily. i live my life in physical pain the way normal people live without it. i don't have a choice in this, so i have adapted to fit it. my body has certain things wrong that will always cause me pain. fine. i have learned to live around the physical pain. that's not what scares me anymore. what scares me, is the emotional pain. mental pain. and that, i heap upon myself when i self-destruct. i heap it on like you wouldn't believe. 

until recently, i got caught in an ugly mess of a destructive cycle. i did everything i could to sabotage myself. i degraded myself and let myself be walked all over, hurt and demeaned. i lashed out at people i care about and tried to please the people i didn't care about. i surrounded myself with company that made me squirm inside. i behaved in ways that those who know and love me, would never recognize. and then, the physical side came crashing down. i am still dealing with it currently and won't know much until tomorrow, when i meet with my surgeon. i hope that whatever is going on, is something that won't require surgery or anything drastic. i know that some part of me believes i deserve to lose certain things that mean so much to me. i am trying to fight against that part of me with all that i consciously can.

i guess i should say what moved me recently. finally. i finally hit rock-bottom in my self-destructive cycle and realized i could go no lower. the whole thing was complete. i was finally done. i had enough to remind myself of, enough to cringe over, for a long time. once that was finished, i began picking pieces of myself back up and putting them in a drawer for later- for when i would feel capable of trying to put myself back together again.

time went by where i just existed. until recently. several things happened. one of them though, was that i started reading "the fountainhead" by ayn rand. don't roll your eyes. while you may have to tolerate rand's ideals to read "atlas shrugged" perhaps, "the fountainhead" is purely a work of fiction and can be enjoyed (and yet still moving) as such. i saw myself looking into my own soul when i read the character of dominique francon. and i began to understand. that book has inspired me and lifted me, and also reminded me of why i love writing. there's a lot of beautiful language to be had for someone who knows how to use words- and that is one thing i've always been able to give myself. i know how to use them. i'm a born wordsmith. it's the one thing i never let go of even at my most self-destructive. i deprive myself of writing, but because i know that i CAN. there is never any doubt of that.

right now, i feel simply grateful that something reached me. that since reading that book, i have been able to feel moved by the things i love again. no matter what happens with my health, i have those things. i have writing. i am done being self-destructive because i've finally been able to admit to it, and more  importantly, to the WHY.


if anything i ever write, accomplishes what that book has accomplished for me.....it will be worth everything i've put myself through to get there.
finders keepers. 

Sunday, November 16, 2014

my month of sleeping on couches is OVER!

right now i'm sitting on my new bright and cozy bed. the mattress is something luxuriously plush and tall and comfy, and something i'd never have bought for myself so i am SO LUCKY to have inherited it from my generous sister and brother-in-law. the bedding, a bright red with cream circles that looks very sixties-esque, is new as of last night. it's the perfect mismatch with my bright blue walls and hardwood flooring. and the biggest bonus of all, of course, was that last night (my first night with my new bed).....

I SLEPT LIKE A FREAKING BABY.

now imagined that's underlined twice, with asterisks at each end for emphasis. why? why is this such a big deal? beds are for sleeping. is it really blogworthy for me to be going all mattress crazy on my blog? do i really need to throw in (yet again. oops.) that i SLEPT LIKE A FREAKING BABY?

meh.....probably not. but look at it this way. i'm someone who has had some pretty major back problems the past few years. these existed before any of other health issues, and grew to be even worse due to the nature of the health issues that later arrived and made themselves at home.

so very recently, things were getting BAD for my back. every time i slept on my old, hard as a board bed, i'd wake up in agony and take about ten minutes to slowly move each limb to the edge of the bed, and then slowly try to stand. dressing took FOREVER because i had to sit down to put most of my clothes on and couldn't bend over to put my socks on without much discomfort and i'll admit, unkindly words of the sailor variety.

let's just say, i stopped sleeping on that bed because it was doing damage to me. i have literally been sleeping on couches for the last month, trying to buy a mattress. and then, i got one for free. and a really, really good one too.

aww it's november. so sure, i'm thankful. and what great motivation too ;) right now i'm writing from my bed, which i so often loved to do before. now i''m back in my big cozy bed and loving it. this is how you spend sunday nights man. i'm writing the night away on a very exciting project......playing WoW and reading.

multitasking is good, my friends.
especially when you have a giant comfy bed to do it in!!


;)

Sunday, November 2, 2014

this is how my brain works in the fall/winter (is coming!) sorry couldn't help that....anyway.....

the past few months of my life have been difficult.
trust me, at this point....i'm REALLY sick of saying that. i'm sick of it being my motto- that's what it feels like. but let me say, it's led me to some really good realizations and changes so, it's not wasted.

it's never wasted, life being hard. i'm really starting to understand that.

my great grandma passed away in the beginning of september, and a cycle began. i couldn't see it then, but now with the benefit of hindsight i can. her death brought a sharp reality into my brain and my heart and really every part of me, that i had never experienced before. i began to get a little morbidly interested in death. i was dealing with all parts of it. the physical loss of a person. seeing a person's body and knowing that their soul is missing. wondering, where that goes. wondering, if we remain conscious through everything, do we become pure matter without consciousness? so many thoughts.

and then not long after my great grandma passed away, taking with her this presence that had existed before i was born and had been there my entire life so far......a whole different aspect of death came in from the other side. scout, for all intents and purposes my baby. dying. dying. and then gone.


and after lying on the floor at the vet's office, holding scout's face so that our eyes were staring right into each other's and our noses touched, and i watched the life slowly ebb from him and i was still holding him. crying hysterically because death once again was here. and i didn't know what to do. it quickly took my great grandma and it quickly took my companion and child. and my world was just kind of rocked. it was rocked while suddenly death seemed to be the only thing i could thing about. death, in all its stages and exactly what it is and does. and at the same time, the season is changing from gentle fall to harsher whisperings of winter, with early darkness and promised snows.....


and i am just like, what the hell.

k life, just calm the eff down for a moment. let me breathe. my anxiety starts causing panic attacks and my meds need to be adjusted. and then, something bad happens. a week later, i'm down with pouchitis again. i'm starting to realize that i am doing certain things to myself sub-consciously. that i am internalizing guilt and shame and anger, and that these things are attacking me now the same way they were attacking my colon. and i'm realizing i'm setting myself up for a crappy life if i don't check myself and fast. reigning in my self-loathing, so i can actually get healthy. that is all i want, i realize. all i want.

so here i admit, i have issues. everybody has their own. but mine are just.....they're issues born from trauma. i didn't understand that these kind of issues don't just go away with a little affirmation in the mornings, or whatever. i have issues directly related to the fact that my life was about being sick, potentially dying, and just surviving day-to-day. my life has been survival. and just that. so while in some aspects i've certainly matured beyond my years. it's obvious to me whenever i'm around my peers. it's also obvious that my social skills are lacking, and that's directly related to me being very isolated when i was sick. i was missing out on years of emotional growth in very basic ways, while making emotional growth into advanced stages in other ways. i have a deep understanding about pain and loss, and the special horror of your body destroying itself so systemically. like a program gone wrong, and suddenly it's just going into shutdown and your  heart and your spirit are screaming. this isn't what you wanted! and not so young. the physical and mental/emotional are at odds. and having your body become the grounds of a civil war between your soul, your core, and the physical. it's a mess.

i didn't really understand, even with all my preparations, what kind of mark sickness and surgery were going to leave on me. what kind of isolation i really sank into. like a big bathtub full of icy water. nearly two years since my first surgery, and i still can hardly fathom it.  it's still hard to look at the pictures. my health hasn't gotten THAT much better. i do not feel "done" with this yet, and i'd hoped that i would be at this point.

i've  always been an intense person. but all of that, and the mark it's left on me, has made me even more intense. i'm trying to learn what to dial down, and what is actually good intensity. i'm trying really hard to be a good person, because i feel like i wasn't made a "good person", with traits that lend well toward goodness. ha! if anything, i have a host of traits that lend toward selfishness, vanity, impatience with myself, and the deep-down, marrow-deep belief that i am not worth anything. i have a temper, i can be calculating. i have some tendencies that would lend well to me being a sleazy person, not caring about anything but living this life- and living it the way i want to.

but then there's a whole other side-just less developed, where good traits have been fed and watered in recent years. if i care for them, if i tend to them, can they overtake the rottenness that is already there?

i want to be a GOOD PERSON. it sure doesn't sound glamorous at all, but i've never cared much for glamor anyway. i think i have the makings of both a lousy person and a good one (don't we all?) but i think the good things are in the beginning stages of being able to overpower the bad, finally. it will be a process long and slow. but that's what life is, right?

ps- i want to be a good person. i'm not all that stoked on being a completely sane person ;)  though...heh. the greatest artists and writers never are. my intensity fans the flame of my creativity, so though dialed-down it may become.....


......it will never disappear.

Friday, October 24, 2014

yeah, i'm awake.

a rude awakening that my perspective is way off. that i always, always, ALWAYS expect the worst and react that way to everything. that i do not communicate well, despite my intentions. that i expect passive-aggressiveness, for everything to really mean something else. i grew up with that such a part of my life that now, it's burrowed into my brain. i feel stupid, and ashamed and i'm tired. sometimes i feel like i have nothing good to offer anybody. really.




Sunday, October 12, 2014

the beauty of it

once you understand your own capacity, the depth of feeling you can have for other people and creatures and things, then you know exactly who and what to really let in. you decide exactly who you're going to love, respect, and cherish and anything else. you decide who and what you might only tolerate to add to the greater good of your life. nobody else decides it for you. you decide who and what are really worth making space and time for. and that's the beauty of it! nobody can force you to love them, respect them, like them or even make room for them. and you can't decide that for anybody else. and it's not an insult, it's human nature. we are all so different. we will not all love or respect or like each other the same way, we may not want everybody who wants to be in our lives to be there. sometimes there simply isn't any room for what certain people or things bring you.

 and that's okay.


Sunday, August 17, 2014

life IS made of moments

i've heard that phrase a thousand times and dismissed it as trite or trying too hard. "everyday life isn't that poetic," i'd scoff. this was me, sick, after all. and my "moments" were spent in pretty non-poetic ways.

but i've had a change of heart. don't i always? life absolutely IS made of moments. all different kinds. they don't have to be poetic to matter, though there are plenty that are and do. i've realized that life is made of moments, as i've tried harder and harder to capture them in some way.

the why is simple. everyone now likes to photograph and note just about everything they do. it's part of culture to "share" and therefore make everything shareable. for me, it's a little different. my short-term memory is a little like dory's from finding nemo. ;) this is yet another unexplained bit of fun in the endless parade of "weird things my body has decided to do" since getting sick/being treated/having surgeries. my memory used to be sharp as a tack and endless. i was good at remembering just about everything, especially things i didn't want to. ;)

now? it's hard to explain the stretches of emptiness where memories should be. it's not like it's THAT bad, that i'm losing it or something. it's just...not very much time has to pass, and things begin to fade. not all that slowly, and suddenly, an event or time has a single image attached to it that i remember. and that's it. a dozen little things may have transpired but it have a fixed image of just one. just some random moment that i can recall, and not much else. the irony in my life truly is never-ending....right? anyone who knows me, has heard me talk about this and would probably agree.

anyway....this summer, i decided i really wanted to try and snag myself more "moments" by taking a lot of pictures. yes, i get razzed for this. no, i don't care. ;) for me, it's the difference between having a wonderful night with friends and remembering two seconds of us sitting by the fire versus, looking at a picture and remembering an ENTIRE conversation because of one word i typed in below it for myself to look back on later. it's the difference between SUMMER: LONG NIGHTS HOT DAYS and, remembering all the different nights and the things i did, longboarding down the canyon and the conversations around the fire and the camping and the stargazing and getting ice cream and making dinner and my sister's wedding and the salt flats at sunrise with the ruki's for my aunt's wedding and and and....the list is endless. and the days? instead of ME AND BEKAH WENT PLACES it's, we went up the canyon and ran around sundance, explored parks in alpine and orem and went to the mall where she picked out dozens of pairs of crazy leggings.

 yes, i have pictures and little blurbs of key words for these things and i remember them because of it. i'm not embarrassed that this is how i have learned to remember things, since my memory has gone to pot after the medications and the anesthesia and maybe even because of the emotional trauma of my illness and the bag, etc. i don't want or mean to sound dramatic. this is just a fact of the past few years of my life, the reality of my everyday existence for awhile. there was a lot of time spent in drug-induced hazes, gray space in my bed or in a hospital. "medicated" was my middle name.

actually, i'm proud. i have a summer to look back on, filled with moments. made up of them, even. and this time, they won't fade.

Sunday, August 10, 2014

finito

oh my goodness, the relief.

i have made solid decisions. changes. set my course and grabbed a compass. FINALLY. finally after months of floundering and wandering with no sense of direction, i know where i want to go.

work begins tomorrow, and i am ready. i have set sail things that i have no business keeping harbored any longer. taking old adages to heart and moving forward. learning what serves a purpose, and what doesn't. it sounds a little cold and calculating, and maybe it is. but i didn't fight for my health the past few years to live the life i've had for the last  (much too) long while. so, here it goes.done. kaput.



auf wiedersehen, goodbye.





Thursday, August 7, 2014

consequences

sometimes i just feel like my actions don't deserve half of the crap i'm putting up with right now. like i'm the butt of a constant, lousy joke.

Saturday, August 2, 2014

one more

one more thing and i'm gone.




and that's the good thing about being me, i guess. one of the only good things. i have a million places to go.






the second best thing is, it won't matter.

Saturday, July 19, 2014

you are here <---

those self-destructive avenues we wander down, ignoring the signs telling us to turn back or to keep out. we don't like to ask for directions. we ignore signs. we don't bring a map. and even when we can feel ourselves getting more and more lost with each turn, we don't stop. what do you do about it? what can you even say in your own defense, for arriving at a fork in the road and choosing the path that you know ends in a murky swamp or a sweeping cliff, or dark and endless woods? self-destruction is the ultimate in harm- you do it to yourself, and like quicksand you can't get out.

and you chose it. you made it that way.